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      Supporting public involvement in interview and other panels: a systematic review

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          Abstract

          Background

          Members of the public are increasingly being invited to become members of a variety of different panels and boards.

          Objective

          This study aimed to systematically search the literature to identify studies relating to support or training provided to members of the public who are asked to be members of an interview panel.

          Search strategy

          A systematic search for published and unpublished studies was carried out from June to September 2015. The search methods included electronic database searching, reference list screening, citation searching and scrutinizing online sources.

          Inclusion criteria

          We included studies of any design including published and unpublished documents which outlined preparation or guidance relating to public participants who were members of interview panels or representatives on other types of panels or committees.

          Data synthesis

          Results were synthesised via narrative methods.

          Main results

          Thirty‐six documents were included in the review. Scrutiny of this literature highlighted ten areas which require consideration when including members of the public on interview panels: financial resources; clarity of role; role in the interview process; role in evaluation; training; orientation/induction; information needs; terminology; support; and other public representative needs such as timing, accessibility and support with information technology.

          Discussion and conclusions

          The results of the review emphasize a range of elements that need to be fully considered when planning the involvement of public participants on interview panels. It highlights potential issues relating to the degree of involvement of public representatives in evaluating/grading decisions and the need for preparation and on‐going support.

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          Most cited references27

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          Consumer involvement in health research: a review and research agenda.

          The involvement of consumers in health research is now Department of Health policy within the UK. Despite the existence of policy directives, there is a dearth of knowledge on the effects of such involvement. This paper critically reviews the state of our knowledge on this issue, and maps out a research agenda with the aim of stimulating systematic, empirical inquiry into consumer involvement in health research. The paper discusses definitions of 'the consumer'; considers why consumer involvement is believed to be important to health research; traces the development of the policy; analyses the epistemological and methodological implications of the policy; discusses the various levels of consumer involvement in research; and outlines the objections to the policy that have been put forward by clinicians and researchers. Four questions were identified during the review as being in need of theoretical and empirical attention: (1) how can consumer involvement in health research be further conceptualised? (2) how and why does consumer involvement influence health research? (3) how can the influence of consumers in health research be measured and evaluated? and (4) what factors are associated with 'successful' consumer involvement in health research?
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            • Record: found
            • Abstract: not found
            • Article: not found

            Public involvement in health care.

              Bookmark
              • Record: found
              • Abstract: found
              • Article: not found

              Involving consumers in a needs-led research programme: a pilot project.

              To describe the methods used for involving consumers in a needs-led health research programme, and to discuss facilitators, barriers and goals. In a short action research pilot study, we involved consumers in all stages of the Health Technology Assessment (HTA) Programme: identifying and prioritizing research topics; commissioning and reporting research; and communicating openly about the programme. We drew on the experience of campaigning, self-help and patients' representative groups, national charities, health information services, consumer researchers and journalists for various tasks. We explored consumer literature as a potential source for research questions, and as a route for disseminating research findings. These innovations were complemented by training, one-to-one support and discussion. A reflective approach included interviews with consumers, co-ordinating staff, external observers and other programme contributors, document analysis and multidisciplinary discussion (including consumers) amongst programme contributors. When seeking research topics, face-to-face discussion with a consumer group was more productive than scanning consumer research reports or contacting consumer health information services. Consumers were willing and able to play active roles as panel members in refining and prioritizing topics, and in commenting on research plans and reports. Training programmes for consumer involvement in service planning were readily adapted for a research programme. Challenges to be overcome were cultural divides, language barriers and a need for skill development amongst consumers and others. Involving consumers highlighted a need for support and training for all contributors to the programme. Consumers made unique contributions to the HTA Programme. Their involvement exposed processes which needed further thought and development. Consumer involvement benefited from the National Co-ordinating Centre for Health Technology Assessment (NCCHTA) staff being comfortable with innovation, participative development and team learning. Neither recruitment nor research capacity were insurmountable challenges, but ongoing effort is required if consumer involvement is to be sustained.
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                Author and article information

                Contributors
                s.k.baxter@sheffield.ac.uk
                Journal
                Health Expect
                Health Expect
                10.1111/(ISSN)1369-7625
                HEX
                Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
                John Wiley and Sons Inc. (Hoboken )
                1369-6513
                1369-7625
                17 August 2016
                October 2017
                : 20
                : 5 ( doiID: 10.1111/hex.2017.20.issue-5 )
                : 807-817
                Affiliations
                [ 1 ] NIHR Research Design Service Yorkshire and Humber University of Sheffield Sheffield UK
                [ 2 ] School of Health and Related Research University of Sheffield Sheffield UK
                [ 3 ] NIHR Research Design Service Yorkshire and Humber University of Leeds Leeds UK
                [ 4 ] Patient Involvement Member of NIHR RDS Yorkshire and Humber PPI Forum
                Author notes
                [*] [* ] Correspondence

                Susan Baxter, School of Health and Related Research, University of Sheffield, Sheffield, UK.

                Email: s.k.baxter@ 123456sheffield.ac.uk

                Article
                HEX12491
                10.1111/hex.12491
                5600233
                27535876
                a02849a4-da7b-4c5f-937d-4fb531255232
                © 2016 The Authors. Health Expectations Published by John Wiley & Sons Ltd

                This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

                History
                : 24 July 2016
                Page count
                Figures: 1, Tables: 5, Pages: 11, Words: 8234
                Funding
                Funded by: National Institute for Health Research
                Categories
                Review Article
                Review Articles
                Custom metadata
                2.0
                hex12491
                October 2017
                Converter:WILEY_ML3GV2_TO_NLMPMC version:5.1.9 mode:remove_FC converted:15.09.2017

                Health & Social care
                lay members,public involvement,public participation,public representatives,systematic review

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