Revised upper limb module for spinal muscular atrophy: Development of a new module.

Mazzone, Elena S.; Mayhew, Anna; Montes, Jacqueline; Ramsey, Danielle; Fanelli, Lavinia; Young, Sally Dunaway; Salazar, Rachel; De Sanctis, Roberto; Pasternak, Amy; Glanzman, Allan M; Coratti, Giorgia; Civitello, Matthew; Forcina, Nicola; Gee, Richard H; Duong, Tina; Pane, Marika; Scoto, Mariacristina; Pera, Maria Carmela; Messina, Sonia; Tennekoon, Gihan I.; Day, John W.; Darras, Basil T.; De Vivo, Darryl C.; Finkel, Richard S.; Muntoni, Francesco; Mercuri, Eugenio

doi:10.1002/mus.25430

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Revised upper limb module for spinal muscular atrophy: Development of a new module.

Author(s): Elena S. Mazzone, Anna Mayhew, Jacqueline Montes, Danielle Ramsey, Lavinia Fanelli, Sally Dunaway Young, Rachel Salazar, Roberto De Sanctis, Amy Pasternak, Allan Glanzman, Giorgia Coratti, Matthew Civitello, Nicola Forcina, Richard H Gee, Tina Duong, Marika Pane, Mariacristina Scoto, Maria Carmela Pera, Sonia Messina, Gihan I. Tennekoon, John Day, Basil Darras, Darryl De Vivo, Richard Finkel, Francesco Muntoni, Eugenio Mercuri

Publication date: 2016-10-04

Journal: Muscle & Nerve

Publisher: Wiley

Keywords: Hammersmith functional motor scale, Rasch analysis, functional assessment, outcome measures, spinal muscular atrophy, upper limb function

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Abstract

There is a growing need for a robust clinical measure to assess upper limb motor function in spinal muscular atrophy (SMA), as the available scales lack sensitivity at the extremes of the clinical spectrum. We report the development of the Revised Upper Limb Module (RULM), an assessment specifically designed for upper limb function in SMA patients.