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      Infusing disability equity within rehabilitation education and practice: A qualitative study of lived experiences of ableism, allyship, and healthcare partnership

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          Abstract

          Background

          Addressing issues of diversity, equity, and inclusion (DEI) has become central in implementing inclusive and socially responsible rehabilitation education and clinical practice. Yet, the constructs of disability and d/Deaf identity and culture, as well as ableism and allyship are often overlooked. Or, these concepts are approached using outdated philosophical perspectives that pathologize disability and fail to prioritize the lived experiences, expertise, intersectionality, and self-identified needs of people with disabilities. A Critical Disability Studies (CDS) framework may provide a background for better understanding and responding to these issues through allyship.

          Purpose

          This study employed a CDS framework to understand the lived experiences of ableism and allyship from faculty, staff, and students on University of Washington (UW) campuses who identify as d/Deaf, disabled/with a disability, or as having a chronic health condition.

          Methods

          During 2020–2021, we conducted in-depth, semi-structured interviews and focus groups with 22 diverse undergraduate and graduate students, faculty, and staff with disabilities, one third who also identified as people of color. Encounters were audio-recorded, transcribed verbatim, and coded using constant comparison until themes emerged.

          Results

          Four major themes that emerged from the data are: (1) Ever-present ableism in healthcare, (2) Ableism at the intersections, (3) COVID: Surfacing ableism and expanding access, and (4) Disability allyship and healthcare partnership building. Experiences of ableism and allyship were identified at individual, group/unit, and institutional/systemic levels, though participants reported significantly fewer instances of allyship compared to experiences of ableism. Participants identified intersections between disability and other marginalized identities and juxtaposed the benefits of widespread adoption of many access-increasing practices and technologies due to the COVID-19 pandemic, while also highlighting ways in which the pandemic created new obstacles to inclusion.

          Conclusions

          This analysis provides insights into ways of implementing inclusive practices in rehabilitation education, practice, and beyond. Rehabilitation students, faculty, and staff may not be aware of how ableism affects their disabled peers or underpins their professional education. It is important to cultivate opportunities within professional education and clinical training to explicitly address our collective role in creating inclusive and accessible academic and healthcare experiences for our diverse community post COVID-19. Drawing on a CDS framework, the research team devised the mnemonic TRAC, which includes Training, Recognition and Representation, Attendance and Action, and Calling to account as strategic guidelines for operationalizing such opportunities.

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          Most cited references64

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          Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color

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            Choose your method: a comparison of phenomenology, discourse analysis, and grounded theory.

            The purpose of this article is to compare three qualitative approaches that can be used in health research: phenomenology, discourse analysis, and grounded theory. The authors include a model that summarizes similarities and differences among the approaches, with attention to their historical development, goals, methods, audience, and products. They then illustrate how these approaches differ by applying them to the same data set. The goal in phenomenology is to study how people make meaning of their lived experience; discourse analysis examines how language is used to accomplish personal, social, and political projects; and grounded theory develops explanatory theories of basic social processes studied in context. The authors argue that by familiarizing themselves with the origins and details of these approaches, researchers can make better matches between their research question(s) and the goals and products of the study.
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              Qualitative Research : A Guide to Design and Implementation

              <b>The bestselling guide to qualitative research, updated and expanded</b> <p><i>Qualitative Research</i> is the essential guide to understanding, designing, conducting, and presenting a qualitative research study. This fourth edition features new material covering mixed methods, action research, arts-based research, online data sources, and the latest in data analysis, including data analysis software packages as well as narrative and poetic analysis strategies. A new section offers multiple ways of presenting qualitative research findings. The reader-friendly, jargon-free style makes this book accessible to both novice and experienced researchers, emphasizing the role of a theoretical framework in designing a study while providing practical guidance. <p>Qualitative research reaches beyond the <i>what, where,</i> and <i>when</i> of quantitative analysis to investigate the <i>why</i> and <i>how</i> behind human behavior and the reasons that govern such behavior, but this presents a number of significant challenges. This guide is an invaluable reference for students and practitioners alike, providing the deep understanding that this sometimes difficult area of research requires to produce accurate results. The book contains a step-by-step guide to analyzing qualitative data and an addendum for graduate students with a template for a thesis, dissertation, or grant application. <ul> <li>Build a strong foundation in qualitative research theory and application</li> <li>Design and implement effective qualitative research studies</li> <li>Communicate findings more successfully with clear presentation</li> <li>Explore data sources, data analysis tools, and the different types of research</li> </ul>
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                Author and article information

                Contributors
                Journal
                Front Rehabil Sci
                Front Rehabil Sci
                Front. Rehabilit. Sci.
                Frontiers in Rehabilitation Sciences
                Frontiers Media S.A.
                2673-6861
                2673-6861
                02 August 2022
                2022
                : 3
                : 947592
                Affiliations
                [1] 1Department of Rehabilitation Medicine, University of Washington , Seattle, WA, United States
                [2] 2Disability Studies Program, University of Washington , Seattle, WA, United States
                [3] 3Center for Research and Education on Accessible Technology and Experiences (CREATE), University of Washington , Seattle, WA, United States
                [4] 4The Disability and Deaf Cultural Center, University of Washington , Seattle, WA, United States
                Author notes

                Edited by: Tatiana Ogourtsova, McGill University, Canada

                Reviewed by: Tim Ross, Holland Bloorview Kids Rehabilitation Hospital, Canada; Ivan Neil Gomez, University of Santo Tomas, Philippines

                *Correspondence: Heather A. Feldner hfeldner@ 123456uw.edu

                This article was submitted to Disability, Rehabilitation, and Inclusion, a section of the journal Frontiers in Rehabilitation Sciences

                Article
                10.3389/fresc.2022.947592
                9397845
                344ca556-79dc-4618-9345-6704b9393f80
                Copyright © 2022 Feldner, Evans, Chamblin, Ellis, Harniss, Lee and Woiak.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

                History
                : 18 May 2022
                : 13 July 2022
                Page count
                Figures: 3, Tables: 0, Equations: 0, References: 66, Pages: 17, Words: 12425
                Categories
                Rehabilitation Sciences
                Original Research

                disability studies,rehabilitation,equity,ableism,allyship,qualitative inquiry

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